National Cued Speech Association

Parent Perspectives

I Was Born Healthy

by Rachel McNallen

I was born a healthy 9 pounds via Caesarean section in Hinsdale, Illinois in 1990. My parents were sent home with a daughter they had named Rachel and were somewhat mystified by my preternaturally loud shrieks, which signaled basic infant care needs. Universal newborn hearing screening was a thing of the future.

My father would comment on my “raptor calls,” his affectionate moniker for my ear-splitting cries. Meanwhile, my mother (Sandy Mosetick) made subtle, unconscious adjustments to our routines to accommodate for a yet-to-be-identified hearing loss. For example, she would position herself within my line of sight rather than trying to call after me. Read More. »

Freedom to Communicate

by Hend Ibrahim

I always assumed that deaf people communicated through sign language and thought it was a universal language. So when my husband Sanjar and I first learned that our third child, Adam, had Usher Syndrome type 2C and was profoundly deaf in his left ear, I began to learn and use American Sign Language. Adam has a moderate to severe loss in the right ear.

Learning sign was fun and easy and most signs made sense. I wanted to communicate with Adam on the same level as I communicated with my other hearing children; soon it became too difficult. I had to pause, to search online how to sign specific words. It was burdensome and I just couldn't keep up. I tried attending silent dinner meetings to meet deaf, hard of hearing and hearing people interested in ASL, but I couldn't even have basic conversation. I was frustrated. As Adam grew, my lack of fluency would mean a lack of communication, which would be disastrous. Read More. »

Cued Speech is My Family’s Vocation

by Suzy Brown

Cued Speech is a vocation for me and my family. A vocation is a calling. It's different from a job or career; it's a part of who you are and permeates every aspect of your life.

My daughter Felicity is profoundly deaf. Through some stroke of luck, I already knew some sign language, having used it with my son with speech apraxia. I started signing to her from day one, but even so, I felt a deep disappointment – it wasn't enough. It was a life saver for my son, who needed a way to express himself before he could speak. But as a stand-alone method of communication, it was frustratingly limited. So many words didn't have a sign or had to be finger-spelled. English is a rich language and sign language was not able to convey it all. Read More. »

Prachi’s Story

by Preeti Kochar

Preeti Kochar writes about how her daughter was diagnosed, the frustrations of “going it alone” and how they learned about Cued Speech. Prachi gained fluency in English very quickly after being exposed to Cued Speech and is now learning Hindi using Hindi cues.

After many years of wanting a child we finally had a beautiful daughter, she was perfect and very alert. We named her Prachi (Sanskrit for the East). At two weeks old, my mother, who was visiting from South Africa, told me Prachi was a very bright child. Read More. »

Stephanie’s Story

by Trish Pagano

Stephanie Pagano began using Cued Speech at a young age and received a cochlear implant when she was five. Her mother tells the story of how they came across Cued Speech and began using it with Stephanie, as well as why they decided to get her an implant.

At 9 months my daughter was starting to call me from her crib. She began to babble and would say “Bye Bye” to me when I left her at daycare. At 10.5 months she had a high fever and ear infections that we had a hard time getting rid of. When she was 14 months, the dog barked right behind her and she wasn’t startled, I knew something was wrong. Read More. »

Our Success with Cued Speech and Audiotry Neuropathy

by Deanne and Judd Grafe

Lexi and Isaiah Grafe both have auditory neuropathy. Their parents describe how Cued Speech helped them succeed first in an oral program, and then mainstreamed in the local school. They also talk about the advantage (a solid understanding of English) that Cued Speech gave the children as they learned to use their recent cochlear implants.

My name is Deanne Grafe and my husband, Judd and I are the parents of two profoundly deaf children. Lexi is 6 years old and Isaiah is 5 years old. When Lexi was 15 months old, we took her in to see her pediatrician for a check-up. She had a checklist of milestones and Lexi had hit every one of them except for beginning to talk. Her doctor asked if she was at least saying Mama and I said “no”. She said “I wouldn’t worry about it, but if she’s still not talking at 18 months, we’ll do some hearing tests.” On the drive home, I started to get that horrible feeling in the pit of my stomach that something was very wrong. Read More. »

Cued Speech & Auditory Processing Disabilities

Written by a mother whose daughter, age 4, has auditory processing disabilities

One thing we did find out is that Laura does NOT have a hearing loss. The ABR results apparently are not correct. I had her hearing tested again in Denver, by a pediatric OTO [otolaryngologist] and everything looks great. Her tympanometry isn’t good but that is not a concern by anyone I speak to. So we are back to square one with Central Auditory Processing Disorder and Read More. »

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